With the sad passing of Charlotte Figi due to covid, we look at her positive legacy and remember how she inspired and changed the global narrative about the benefits of CBD.
Any search for CBD online will lead you to Charlotte’s Web CBD. It’s the celebrated story of how CBD helped a child struggling with a severe form of epilepsy called Dravet Syndrome.
What makes the story so remarkable is not only Charlotte’s age she was 4 when she started taking CBD, but also the immediate change in her condition after years of suffering seizures that modern medicine couldn’t alleviate.
Charlotte Figi began having seizures at just three-months-old and was two-years-old when she was diagnosed with Dravet’s Syndrome.
Over the years, the Figis family tried everything in an attempt to treat her and alleviate the seizures. They followed everything from drugs to diets, going to special children’s hospitals and consulting epileptic specialists. Some offered mild or temporary relief, but the seizures always returned.
Another two years went by and Charlotte was having up to 300 seizures a week, losing the ability to walk, talk and eat. It was at this point that her parents, Matt and Paige, while urgently looking for alternatives, found a video of a young boy with the same condition who’d been successfully treated with medical cbd.
After receiving the required recommendation from two doctors and having it tested at a lab, she nervously gave Charlotte a small dose of non-psychoactive, plant extracted CBD oil. Incredibly the CBD epilepsy treatment worked. The seizures stopped.
Following the successful trial, the Figis working with a Colorado-based family growing CBD created a particular strain of medical marijuana which they Charlotte’s Web making it available for Charlotte and others sufferers to further her CBD healing.
In December 2017 a research paper entitled ‘Cannabinoids in the Treatment of Epilepsy: Hard Evidence at Last?’ published in the Journal of Epilepsy Research, reported on the potential anti-seizure efficacy of cannabinoids with the completion of the first high-quality placebo-controlled trials of a purified oil-based liquid CBD preparation in patients with Dravet syndrome and Lennox-Gastaut syndrome.
It concluded that there is now, for the first time, class 1 evidence that CBD improves seizure control when added on to other AEDs in patients with two difficult-to-treat epileptic encephalopathies.
Combined with a further study In April 2018, by the U.S. Food and Drug Administration approved Epidiolex (cannabidiol) [CBD] oral solution for the treatment of seizures associated with two rare and severe forms of epilepsy, Lennox-Gastaut syndrome and Dravet syndrome, in patients two years of age and older.
This is the first FDA-approved drug that contains a purified drug substance derived from marijuana CBD. It is also the first FDA approval of a drug for the treatment of patients with Dravet syndrome. As more studies emerge, the power of CBD healing will continue to grow.